HEAD START®
Caring for Children with
Chronic Conditions
Training Guides for the Head Start Learning Community
Table
of Contents | Preface
| Introduction |
Module 1 | Module
2 | Module 3
| Continuing Professional
Development | Resources
Module 1: Next Steps - Ideas to Extend Practice
Module 1 | Activity 1
| Activity 2 |
Activity 3 | Activity 4
| Next Steps
1. Search the WWW for Resource Information
In order to understand the affect of a chronic illness on a particular
family, one must listen to the family and its experience of the illness.
It can also be helpful to get additional information about the condition.
One excellent source of information about resources is the World Wide
Web (WWW; also called the Web).
- Learn how to use the Internet to search the Web to find information
and resources about a specific chronic condition. Several sites on the
Web have very useful and practical information.
- First you need access to a computer that can connect to the Internet
via a dial-up service provider (e.g., Slipnet.com or Sprynet.com) or
an on-line service (e.g., America On-Line or Prodigy) and a web-browser
(e.g., Microsoft Explorer or Netscape) that allows you to access information
on the Web. If there is no computer at your program, community resources
such as libraries or schools might provide Internet/WWW access.
- Discuss with the family any issues that they may have regarding the
illness. Is there a specific illness or issue that they would like to
have more information about?
You can search the entire Internet for a specific topic, such as childhood
asthma, or for a general topic, such as children's health. Using
your on-line service to access the Internet will allow you to use a
search engine (e.g., Yahoo, Excite, Lycos, Hot Bot) to look for a link
to relevant documents or a Web site that covers your topic.
Many Web sites will allow you to do additional searches for information
contained at that site. For example, using your search engine, if you
enter a search for "children's health," you will retrieve
thousands of Web sites. From there you can choose to go to one particular
site, for example, KidsHealth.org. Once at KidsHealth.org, you can search
for "asthma" and retrieve even more documents, from published
articles to helpful hints on handling emergencies.
You can print out this information and share it with the parents or
you can use the information to make handouts to share with staff members
and other parents in your program.
The best way to learn about the Internet is to sign on-line and surf
the Web!
Trainer's Note:
The WWW is rapidly growing and more and more individuals and organizations
are creating home pages; practically anyone can design a home page.
So, information and resources retrieved from sites should be viewed
with caution; some information may be more reliable than others. Medical
information retrieved from a Web site should be reviewed by the Health
Services Advisory Committee before it is shared with parents and staff.
Much of the health information on the WWW is public domain, which means
it can be reproduced. However, always verify whether information you
retrieve is protected by copyright laws before distributing it to staff
and parents.
2.
Share the Information You Found on the WWW
Are there other ways that these skills can be useful to your program?
- Check with other programs, parents, or staff to see if they know
of any other Web sites about children's health, a specific condition,
or parent networks.
- Search the Web for support groups for parents of children with
specific conditions. There may be statewide support groups for families
of children with special needs. Parent support groups on the Web may
be particularly helpful for parents of children in rural programs, who
feel isolated in dealing with their child's chronic condition.
There may be an Internet news group (sometimes called Usenet groups)
that will allow parents to exchange information with other people with
similar issues. On-line providers, such as America On-Line, may also
have similar discussion groups.
- Train other staff on how to access information from the Internet
and the Web.
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