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Well-Child Health Care: Making It Happen

Training Guides for the Head Start Learning Community

MODULE 2: partnerships in ongoing well-child health

Outcomes

After completing this module, participants will be able to:

Key Concepts

Well-child health care is the concern of all Head Start staff. The role that each staff member takes will vary, depending on the needs of their Head Start children and the services available in their community.

High quality screenings and exams are characterized by:

Staff members individualize the Head Start program by responding to information they gather from each child's screening and from insights from the child's parents.

Head Start staff provides education for parents, as needed, so they can learn to obtain and administer medication and implement the follow-up plan after health needs are identified.

Background Information

A. The Elements of High Quality Screenings and Exams

Qualified and Trained Examiners

The initial screening and exam period around enrollment is the ideal time to link a child and family to their "medical home." The medical home provides the entire family with ongoing accessible health care. Once linked to a medical home, the parents can develop a long-term relationship with the health care provider. Medical and dental exams must be done by licensed health professionals—the medical exam by a physician, nurse practitioner, or physician's assistant, the dental exam by a dentist. Professional standards require specific procedures and equipment. In addition to the physical and dental exams, properly trained professionals at the medical home will test for anemia, tuberculosis, lead, metabolic disorders, or parasites.

To ensure the provision of well-child health care for each Head Start student, it is essential that Head Start staff assess the community of their families. For example:

- Is there a provider who can perform good developmental screens?

-Are pediatric dentists available?

- Do office hours accommodate working parents?

The Head Start program can then tailor its services to dovetail with existing services. Since well-child health care is a long-term goal, and children may spend only one or two years in Head Start, working towards continuity is important. Head Start's efforts are twofold: to assist families in accessing health services during their time with Head Start, and assuring that families are able to continue with their care in the future. Head Start works with health professional in the local community without duplicating their services.

In some instances, screenings for height/weight, vision, and hearing are performed by properly trained Head Start staff, parents, or volunteers—not the medical home. The Head Start staff does screen to identify concerns regarding a child's developmental, sensory, behavioral, motor, language, social, cognitive, perceptual and emotional skills. The screens are age and language appropriate for the child. Since information and techniques may change, training should be updated regularly.

Standardized and Appropriate Instruments

Instruments are the tools or methods that are used in screening such as the developmental checklist, nutrition questionnaire, and vision charts. High quality instruments are:

- Standardized: The screening instruments should be developed by experts and tested on large numbers of children. They must be "reliable" and "valid"—accurately assessing the child's capabilities when trained examiners perform them correctly. They must also be "normed" to determine the "normal range" of test results around the average that includes 95% of the healthy children tested.

- Appropriate: Screening instruments should be appropriate to the program's needs and resources. Programs should identify screening methods that are comfortable for the children. The time for screening should be short enough for a child to maintain concentration. Ideally, programs should use screening instruments normed on children of similar age, gender, culture, language, and economic background.

Note to Trainer/Coach:

If programs use screening instruments that they have developed on their own, they may not be reliable, valid, or normed. This may lead to lower quality screening results.


Effective Procedures

Evaluating the quality of screening and exam procedures can be subjective. Programs must aim to provide the best experience possible for all participants. The process should:

- Allow children to perform at their best. Children should be prepared in advance. During screenings and exams they should be made to feel comfortable, and the surroundings should help them concentrate.

- Involve the parents. Throughout all exams, screenings, and observations, parents play an important collaborative role. It is important that they understand the procedures their children will undergo, give their consent, and understand the meaning of the results. Head Start staff should be able to explain all procedures and test results, even those they do not perform. Parents should be encouraged to ask questions about the procedures and results. Parents know their child best and can provide valuable information for screening. They should be encouraged to serve on advisory committees, to review procedures, assist in classroom- based screening, and accompany their children to the medical home for clinic-based screenings and exams.

Following Up On Screenings and Exams

- Assessment or diagnostic evaluation provides more in-depth testing or examination to determine whether, in fact, a child has a special health or developmental need. It is done by specialists in child health and development such as a physician, dentist, or psychologist. It also involves the parents, staff, and often other agencies such as schools, developmental centers, and the medical home. Assessment might include standardized developmental tests, specialized physical exams (e.g., neurological or occupational therapy evaluation), and laboratory tests (e.g., blood tests, urine tests, or X-rays).

The assessment might indicate that the child has:

- no specific problem and no follow-up is needed

- no specific diagnosis but some concerns; further observation and follow-up testing may be recommended

- a diagnosis of a health condition and recommendations for treatment and follow-up

- Diagnosis is the specific medical or developmental condition determined by a health professional. For example, a physician might diagnose anemia, and a psychologist might diagnose a learning disability.

A diagnosis helps to understand the child's condition and make specific recommendations for treatment and follow-up. It must not be used to label or stigmatize a child.

- Treatment, therapy, or intervention is the process of caring for any condition that the health professional diagnoses. The treatment aims to cure a health problem or reduce the impact of a disability. For example, a doctor might prescribe medication for anemia, and a psychologist might recommend special education services for a learning disability. Parents and staff in partnership are responsible to see that follow-up plans are developed and implemented.

- Follow-up involves re-evaluation of the child's progress by the parents, staff, and health care providers. How soon, how often, and with whom follow-up is needed depends upon the health condition and the treatment. For example, a child with a simple health problem (e.g., an uncomplicated ear infection) might need a single follow-up visit with one health care provider. A child with a more complex health problem (e.g., failure to thrive resulting from severe child neglect) might need frequent follow-up visits and evaluations over a longer period of time with many different health specialists.

Procedures need to be in place to track both well-child health care and treatment for medical needs. It is important to work with parents to ensure follow-up treatments for diagnosed medical needs found during the screening process. When there are difficulties in following up, it is crucial that program staff, parents, and health care providers re-evaluate the situation and work collaboratively to develop strategies to address the challenges. Health screening, exams, assessments, and diagnoses are only valuable when they are followed by appropriate treatment.

B. The Challenges to Quality Screenings and Exams

Head Start staff have many responsibilities in ensuring that screenings, exams, and immunizations are completed within the time frame specified by the Head Start Program Performance Standards. There are many details to coordinate, document, review, and follow up. All this can be very challenging because the process depends on the cooperation of all of the partners—staff, parents, health care providers, and children. Each partner has her own perspective, needs, and particular difficulties. Some of the challenges include:

Note to Trainer/Coach:

For more information on communication with parents, see the guide Communicating With Parents in the Parent Involvement series of Training Guides for the Head Start Learning Community .


C. The Individualized Health Plan

When medical, developmental, or dental needs are identified, Head Start staff can best meet the needs of children by developing an Individualized Health Plan (IHP). The IHP is a written reference developed in partnership with parents, medical professionals, classroom staff and relevant members of the Head Start management team (dieticians, health coordinators). This plan guides the staff and parents in supporting the health of the student.

Note to Trainer/Coach:

For information on individualized health plans, see the guide Caring for Children with Chronic Conditions in the Health series of Training Guides for the Head Start Learning Community.


D. Everyone's Role in Well-Child Health Care

Well-child health care is an important part of everyone's job. No one person can—or should—be expected to be the only one "responsible" for the health of Head Start children. The responsibility must be shared among all staff.

Through everyday observations, any member of the staff can note a change in the child's health. It may be the dietician who notices the first signs of high blood sugar in a child or the bus driver who observes the first signs of a sickle cell crisis on the long ride to school. An administrator who is spending some time in a classroom can give some individual attention to a child who needs a bit of "TLC" (tender loving care) while recovering from a cold. A home visitor can work with a parent to plan meals high in iron for a child at risk for anemia, or suggest activities for a child whose behavior is challenging.

Questions for Discussion/Reflection

Think about a time when you, a family member, or friend received a screening test or exam. It might have been a physical exam, dental exam, hearing test, cholesterol test, mammogram, PAP smear, or other test.

As you reflect on what made the experience pleasant or unpleasant for you, consider the features of screenings and exams that parents and children experience in your Head Start program.

Activity 1: Locating Services in Your Community

Purpose: Management staff will consider the well-child health care components required within the Head Start Program Performance Standards and determine how their own Head Start program can assure that all children receive the services.

For this activity you will need:

Step 1: Review with participants the section of 1304.20: Child Health and Developmental Services of the standards that describe essential well-child health care.

Distribute to each participant a copy of Handout E: Planning for Services, and your state's EPSDT schedule.

Step 2: Ask each participant to find a partner. Together, have them discuss the ways that children receive each aspect of well-child care in their community. Have participants consider the EPSDT requirements in their state.

Ask participants to think about the various types of well-child health care providers in their area. For example:

Using Handout E and the state's EPSDT schedule, instruct the partners to rate each aspect of care according to its accessibility and quality: high quality, easily accessible, medium quality, some access, or low quality, not accessible.

Step 3: Ask participants to highlight those services on Handout E which they don't believe are available from the health care community in their locale.

Step 4: Give the group about 15 minutes to fill out their handouts.

Step 5: Ask each pair to choose one service that is easily accessible and of high quality, and share with the group. Ask them to describe how they assure that children receive this service.

Step 6: Ask each manager to use the materials from this workshop in planning the health care services in her own program. Lead a discussion with the participants that explores gaps in services in their community.

What does each manager do to ensure that services which are not currently available become available?

Are there things she can do in the short-term, such as:

What can program managers do to assure services in the long-term? Can they… Points to Consider:
Activity 2: Taking Inventory of Screenings and Exams

Purpose: This activity helps participants assess how well they, as individuals and as part of the total program, promote well-child health care. They will discuss the strengths and weaknesses of their program's screenings and exams, and identify areas for improvement. This activity is helpful for staff from all service areas.

For this activity you will need:

Step 1: Distribute Handout F: Taking Inventory. This worksheet will help determine how well you are doing in well-child health care and screening. Take a few minutes to answer the questions.

Step 2: For each question on Handout F: Taking Inventory, ask a participant to briefly explain what it means and why it's important.

Step 3: Discuss the following questions, citing examples from specific screening and exam procedures (e.g., hearing test, screening for developmental concerns, etc.).

Step 4: Discuss the following questions, again citing examples from specific screening and exam procedures:

Step 5: Ask participants to identify for themselves one aspect of screening that they would like to improve over the course of the school year. Write it down, sign it, and give it to your supervisor or partner. Ask the supervisor or partner to put a reminder on the calendar for the month of May to discuss how progress is going with screening.

Points to Consider:

Well-Child Health Care: Making It Happen...

Baby Bottle Tooth Decay is decreasing in Alaskan Communities! The solution? Parent dental health advocates trained in oral-wellness curriculum are dispensing parental support, toothbrushes, and good information throughout the community.

Activity 3: Everyone's Role in Well-Child Health Care

Purpose: This activity give participants the opportunity to review a story of one Head Start program's experience with screening and identify the roles and responsibilities of all the partners: Head Start staff, parents, children, and health care providers. Participants will identify the challenges to good screenings and develop strategies, including advocacy and collaboration building, to overcome the difficulties.

For this activity you will need:

Step 1: Explain that this exercise will illustrate the importance of everyone's role in screenings, identify challenges to good screenings, and develop strategies to overcome them.

Step 2: Distribute Handout G: Health Screening at Twin Oaks Head Start. Read the story aloud or ask a participant to volunteer to read it aloud.

Step 3: Explain that we will diagram the Screening Story. Staff, parents and health care providers all support health screening like spokes support a wheel.

Following the sample copy of Everyone's Role in Screening as your guide, draw a circle with the word "health screening" in the middle on flip chart paper or on a blackboard. Draw and link at least five smaller "role" circles to the "health screening" circle.

In each role circle, have participants list a partner in screening:

Step 4: Have participants list activities for each role that support screening. Write down the activities as smaller spokes off the "role" circles (e.g., Dentist: conduct dental exams).

Step 5: Point to a specific role (e.g., Parents) and ask participants:

Point to an activity (e.g., Family Service Worker: arrange for an interpreter for non-English speaking parents) and ask participants:

Step 6: On the flip chart paper or blackboard, write a heading "Challenges" on the left. Have participants brainstorm a list of the major difficulties in this program's screening story. Write them down in this column.

Step 7: To the right of the column for Challenges, write a heading "Strategies." Have participants brainstorm some strategies by which the key partners can work together to overcome the challenges to screening. Write them down in this column.

Step 8: Ask participants to think beyond this example of dental screening and exams:

Points to Consider:

Activity 4: Exploring the Challenges

Purpose: This activity helps staff identify the challenges and develop strategies for ensuring well-child health care for Head Start children.

For this activity you will need:

Step 1: This exercise allows participants to discuss the challenges to well-child health care from different perspectives.

Step 2: Take a few minutes to review Handout H: Exploring the Challenges.

Step 3: The group will discuss each situation with each participant taking a different perspective. Beginning with situation #1, have each participant identify the role that he or she will play: one person will be the staff person, another the parent, and the third a health care provider.

Take a moment to get into the perspective of your role. Reread the situation and focus on your feelings and the difficulties from your perspective.

Step 4: Take five or 10 minutes to play out the situation. Begin by trying to understand everyone's perspective. Try to move the discussion toward strategies that will help overcome the difficulties.

Step 5: Change roles and proceed to the next situation. Discuss all of the situations in the same manner. Continue to change roles to ensure that everyone has the chance to play every role.

Step 6: Discuss how this activity felt from the perspective of the staff, parent, and health care provider.

Points to Consider: Activity 5: Well-Child Health Care Dilemmas

Purpose: This activity allows participants to evaluate different scenarios for aspects that support or reduce quality well-child health care. Participants will brainstorm strategies for improving their ability to make well- child health care "happen."

For this activity you will need:

Trainer Preparation Note:

Before the training, write down the discussion questions from Step 3 on flip chart paper.

Step 1: Explain to participants that this activity will give them the chance to assess the strengths and problems in various scenarios dealing with the provision of well-child health care.

Step 2: Divide participants into small groups of three to five people. Ask them to imagine they are consultants to help Head Start programs improve the quality of delivering well-child health care.

Step 3: Distribute Handout I: Dilemmas in Assuring Well-Child Health Care to each participant. Explain that each program's dilemma has both quality problems and strengths.

Instruct each group to review each scenario and discuss the following questions (posted on flip chart paper):

Step 4: Reconvene the group and discuss each dilemma with each small group reporting back about the strengths, problems, and strategies they identified. List the strategies on flip chart paper.

Step 5: Ask participants to think about these dilemmas and their experiences with assuring all the elements of well-child health care in their own programs. Ask participants to discuss some of the advantages and disadvantages of:

Step 6: Ask participants to briefly describe any other creative and successful strategies that programs have used to ensure well-child health care, including the completion of screenings and exams, tracking services, and education. Have you heard about any interesting methods that you might like to try in your program?

Points to Consider:

Activity 6: Sam's Story Part Two—Supporting Parents

Purpose: This activity helps participants develop skills in supporting parents in accessing well-child health care and services to follow-up on needs identified in screenings and examinations.

For this activity you will need:

Step 1: Distribute and review with participants Handout J: Sam's Story—Part Two

Step 2: Discuss the following questions:

Step 3: Discuss any experience that you have had with supporting parents in accessing well-child health care and follow-up services.

Step 4: Discuss the following:

Points to Consider:

Activity 7: Observing is Screening

Purpose: This activity helps participants appreciate the role of daily observations in screening.

For this activity you will need:

Step 1: Take 30 minutes to observe two children playing. It can be in a center or home-based setting. Select a boy and a girl who are approximately the same age.

Step 2: Using Handout K: Observation Worksheet, jot down your observations of each child's physical appearance, emotions, behavior, and skills. Write any additional observations in the "Other" section.

Be sure to document your observations in specific, descriptive terms. For example, under "Emotional State" you might write "playing and laughing with other children" rather than "okay."

Step 3: Take 30 to 40 minutes to discuss your observations with your coach or partner(s). Begin your discussion by giving a brief description of each child.

Step 4: Based on your experience with children:

Step 5: Use your worksheets to discuss the following questions. First, focus on the checked "normal" or "typical" features:

Step 6: Next, focus on the circled "questions" or "concerns" features:

Step 7: Take one of your circled items. State what further evaluation (i.e., screening test, exam, assessment, or evaluation) might be needed.

Imagine that the results of this further assessment were normal.

Step 8: Take another one of your circled items. State what further evaluation (i.e., screening test, exam, assessment, or evaluation) might be needed.

Imagine that this further assessment indicated that the child had a special health condition or disability.

Points to Consider:

Note to Trainer:

For more information on developing observation skills, see the guide Observing and Recording: Tools for Decision Making in the Education series of Training Guides for the Head Start Learning Community.

Activity 8: Program Planning

Purpose: This activity illustrates how information from screenings, exams, and assessments can affect plans for classroom interventions and parent education.

For this activity you will need:

Step 1: Explain that participants will be part of an interdisciplinary team conference to review screening and assessment results and develop program plans.

Step 2: Divide participants into four groups: #1, #2, #3, and #4. Instruct each group to begin by…

Step 3: Distribute to Group #1 the Program Planning Story #1 with its attached fact sheet (Anemia) that corresponds to that story. Distribute the handouts in the same manner to Groups #2, #3, and #4.

Step 4: Allow the groups 15 minutes to review their stories and the fact sheets and then develop a program plan to meet the needs of the situation. Address the following questions:

Step 5: Bring the groups back together. Have each recorder read the story aloud and summarize that group's plan.

Encourage other participants to add their comments.

Step 6: Ask participants to describe some health problems that many children in your program have experienced.

Points to Consider:

Activity 9: Keeping Up—Tracking Health Services

Purpose: This coaching activity helps participants assess their program's health tracking system and develop skills in tracking and determining what and when health follow-up is needed.

For this activity you will need:

Trainer Preparation Note:

If you want to update the child health records and tracking instrument so that they reflect current information and have current dates, you will find blank copies of these handouts that you can fill out in Appendix C: Blank Records & Forms.

Step 1: Explain that this activity will help assess your program's health tracking system and develop skills in reviewing tracking records.

Step 2: Ask the participant(s):

Step 3: Distribute Handout C: Child Health Records (from Module 1). Explain that this child, Janine, is attending Trackville Head Start. Distribute Handout M: Trackville Head Start Tracking Instrument. Explain that this tracking instrument includes the health records of Janine's class in the program.

Ask participants to enter Janine's health record into the Trackville Head Start Tracking Instrument in space #15.

Step 4: Distribute Appendix A: Recommendations for Well-Child Health Care or your own state EPSDT guidelines.

Ask participants to use the preventive care guidelines and review the Trackville Head Start Tracking Instrument to identify children or records that need follow-up for any reason. For example:

Instruct participants to circle elements that need follow-up and note what follow-up is needed for each. Allow 10-20 minutes.

Step 5: Review with participants the Trackville Head Start Tracking Instrument. Beginning with Janine, identify any elements in the health records that need follow-up. Then proceed with each of the children, identifying the follow-up needed. (See Key to Activity 9: Keeping Up—Tracking Health Services.)

Step 6: Explain that, once a need for follow-up and a timeframe has been determined, programs need a "tickler file" or reminder system. Ask:

Step 7: Have participants look at the entire class of children on the Tracking Instrument. Ask:

Points to Consider:

Download Key to Activity 9: Keeping Up—Tracking Health Services (For Trainer Only) [pdf 17 KB] Adobe Acrobat PDF logo

Next Steps: Ideas to Extend Practice

Review Your Program's Screenings and Exams

As part of your annual program self-assessment, conduct a "Quality Review" of your program's screening instruments and procedures. Interview children and parents to find out if the screenings and exams were adequately explained to them, if they were made to feel comfortable and involved, and how the process could be improved. Collaborate with other Head Start programs to learn creative approaches to solving screening challenges.

Discuss screenings at a meeting with staff members, parents, Health Services Advisory Committee, Parent Council, and health care providers. You may wish to discuss the following issues:

Keep Health Care Follow-up on the Agenda

Periodically, reserve time to share information about the families' challenges in following through on their children's health care. Gather ideas about how best to support the parents. Develop methods to track the delivery of services to Head Start students.

This system could include a master calendar shared by parents and staff stating when the child is due for services, or an organized system of transportation to and from appointments. Health professionals could be brought on-site to facilitate delivery of services. Screening alone will not ensure well-child health care; following through with preventive services and services to meet special needs is essential.

Assemble a Multicultural Health Panel

When Head Start screenings and exams identify health problems and recommend treatment, the family might not complete the follow-up if their health beliefs are very different from the recommendations.

Invite health experts, families, and community members from different cultural backgrounds to discuss health beliefs and practices of different cultures represented in your Head Start program. Topics of discussion may include the following:

Well-Child Health Care: Making It Happen...

The Health Coordinator from Heartland Head Start in Bloomington, Illinois volunteered to scrub surgical instruments at the month adult free dental surgery clinic. As a result of the volunteer work, the oral surgeons now provide dental surgeries free for Head Start children without insurance or accept what Medicaid pays.

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